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Ist aus dem Zusammenschluss der beiden luxemburger Jagdföderationen FCL und SHCL entstanden. FSHCL - 15, rue de lEcole - L-9167 MERTZIG oder.
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To help advance the research and development of treatment, therapies and care for all those diagnosed with FSHD. More information for particpants and their families. More infomormation for professional users. There are currently 885 patients registered in this database. The registry is funded by Muscular Dystrophy UK. With support from the John Walton Muscular Dystrophy Research Centre. And MRC Centre for Neuromuscular Disease.
A National Italian Registry for FSHD.